UZH-Logo

Maintenance Infos

Ethical considerations concerning the inclusion of women with epilepsy in pregnancy registries


Mouton Dorey, Corine (2015). Ethical considerations concerning the inclusion of women with epilepsy in pregnancy registries. Epileptologie, 32:188-193.

Abstract

Pregnancy registries are essential sources to gain medical and therapeutic knowledge in women with epilepsy who are pregnant or have the desire to give birth. The benefit of treatment for the mother has to be balanced with the prenatal and postnatal risk for the child. To gain reasonable medical evidence, pregnancy registries have to include an adequate and representative number of pregnant women with epilepsy. They will have to observe women during pregnancy and delivery, as well as the foetus respectively the child during its development. In addition, different health care providers have to coordinate their efforts, sharing data while preserving the mother privacy interests. Given these requirements, the multitude of antiepileptic drugs, and the poor knowledge concerning the important implications of the adopted therapy by potential mothers with epilepsy, the rate of patient inclusion in pregnancy registries is still insufficient to provide reliable recommendations for an appropriate medical management. An ethical approach as outlined here aims to overcome some of these obstacles.

Pregnancy registries are essential sources to gain medical and therapeutic knowledge in women with epilepsy who are pregnant or have the desire to give birth. The benefit of treatment for the mother has to be balanced with the prenatal and postnatal risk for the child. To gain reasonable medical evidence, pregnancy registries have to include an adequate and representative number of pregnant women with epilepsy. They will have to observe women during pregnancy and delivery, as well as the foetus respectively the child during its development. In addition, different health care providers have to coordinate their efforts, sharing data while preserving the mother privacy interests. Given these requirements, the multitude of antiepileptic drugs, and the poor knowledge concerning the important implications of the adopted therapy by potential mothers with epilepsy, the rate of patient inclusion in pregnancy registries is still insufficient to provide reliable recommendations for an appropriate medical management. An ethical approach as outlined here aims to overcome some of these obstacles.

Downloads

0 downloads since deposited on 21 Sep 2016
0 downloads since 12 months

Additional indexing

Item Type:Journal Article, not refereed, original work
Communities & Collections:04 Faculty of Medicine > Institute of Biomedical Ethics and History of Medicine
Dewey Decimal Classification:610 Medicine & health
Language:English
Date:2015
Deposited On:21 Sep 2016 14:06
Last Modified:21 Sep 2016 14:06
Publisher:Schweizerische Liga gegen Epilepsie
ISSN:1660-3656
Official URL:http://docplayer.org/19417016-Dezember-2015-issn-1660-3656-epileptologie-32-jahrgang-inhalt-redaktionskommission-beirat-epilepsie-liga-seefeldstrasse-84-ch-8008-zuerich.html
Related URLs: (Publisher)
Permanent URL: https://doi.org/10.5167/uzh-126175

Download

[img]
Content: Published Version
Filetype: PDF - Registered users only
Size: 68kB

TrendTerms

TrendTerms displays relevant terms of the abstract of this publication and related documents on a map. The terms and their relations were extracted from ZORA using word statistics. Their timelines are taken from ZORA as well. The bubble size of a term is proportional to the number of documents where the term occurs. Red, orange, yellow and green colors are used for terms that occur in the current document; red indicates high interlinkedness of a term with other terms, orange, yellow and green decreasing interlinkedness. Blue is used for terms that have a relation with the terms in this document, but occur in other documents.
You can navigate and zoom the map. Mouse-hovering a term displays its timeline, clicking it yields the associated documents.

Author Collaborations