Abstract

Objectives: The number of couples facing a dementia diagnosis for one partner of the spousal dyad increases.
Spousal caregiving can be a highly stressful experience associated with negative caregiver outcomes such as
depression and poorer immune function. However, surprisingly little is known about how the illness and the
required care effects patient’s well-being and relational changes experienced by afflicted couples. The aim of this
study was to provide a literature review on how the dyadic perspective is taken into account and on how dementia
effects both parts of the dyad.
Methods: In order to outline findings about individual and dyadic well-being of affected couples, we conducted a
literature search to review the three types of studies. First, studies focusing on one partner’s perspective, usually
the perspective of the caregiver; second, studies including the caregiver’s and partially the care receiver’s view;
third, studies directly referring to both partners’ perspectives.
Results: The majority of studies neglect the individual with dementia by exclusively assessing caregiver variables
or only indirectly including patients’ characteristics. Very few studies embrace dyadic and relational variables to
execute how both partners experience the illness, spousal caregiving, and changes in the relationship. Despite the
arguable validity of self reports of individuals with dementia, some studies demonstrated the usefulness of
including both partners’ perspectives.
Discussion: Results indicate the urgent need of integrating the perspective of the individual with dementia to
improve the understanding of the effects of dementia caregiving.