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Ethical issues in health research with novel online sources


Vayena, Effy; Mastroianni, Anna; Kahn, Jeffrey (2012). Ethical issues in health research with novel online sources. American journal of public health, 102(12):2225-2230.

Abstract

Health-related research is increasingly drawing on novel sources of online data, such as crowdsourced information about disease outbreaks, consumer-supplied information provided to health or wellness Web sites, Internet search queries about personal health, and social network postings that identify health behaviors. We offer examples of online sources and their uses, identify ethical and policy issues they generate, and formulate key questions for future discussion and investigation. Further work in this area will require cross-disciplinary collaboration to develop ethics and policy guidance for the ethical use of these novel data sources in health-related research. (Am J Public Health. Published online ahead of print October 18, 2012: e1-e6. doi:10.2105/AJPH.2012.300813).

Health-related research is increasingly drawing on novel sources of online data, such as crowdsourced information about disease outbreaks, consumer-supplied information provided to health or wellness Web sites, Internet search queries about personal health, and social network postings that identify health behaviors. We offer examples of online sources and their uses, identify ethical and policy issues they generate, and formulate key questions for future discussion and investigation. Further work in this area will require cross-disciplinary collaboration to develop ethics and policy guidance for the ethical use of these novel data sources in health-related research. (Am J Public Health. Published online ahead of print October 18, 2012: e1-e6. doi:10.2105/AJPH.2012.300813).

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13 citations in Web of Science®
16 citations in Scopus®
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Additional indexing

Item Type:Journal Article, refereed, original work
Communities & Collections:04 Faculty of Medicine > Institute of Biomedical Ethics and History of Medicine
Dewey Decimal Classification:610 Medicine & health
Language:English
Date:2012
Deposited On:19 Sep 2013 06:32
Last Modified:05 Apr 2016 16:02
Publisher:American Public Health Association
ISSN:1541-0048
Publisher DOI:https://doi.org/10.2105/AJPH.2012.300813
PubMed ID:23078484
Permanent URL: https://doi.org/10.5167/uzh-65979

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