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Predictors of parental quality of life after child open heart surgery: a 6-month prospective study


Landolt, M A; Valsangiacomo Büchel, Emanuela R; Latal, B (2011). Predictors of parental quality of life after child open heart surgery: a 6-month prospective study. Journal of Pediatrics, 158(1):37-43.

Abstract

OBEJCTIVE: To prospectively assess parental health-related quality of life (HRQoL) and its predictors after child open heart surgery. STUDY DESIGN: Mothers (n = 135) and fathers (n = 97) of 138 children were assessed at discharge from hospital and 6 months after open heart surgery of their child. Parental HRQoL was compared with population norms. Medical, demographic, and psychosocial predictors of HRQoL were examined. RESULTS: In both parents, several domains of HRQoL were decreased at their child's hospital discharge with mothers showing lower HRQoL than fathers. Mental domains were more affected than physical domains. At 6 months, parental HRQoL was within or above population norms. At discharge, symptoms of post-traumatic stress and at 6 months a high impact of the child's disease on family life were associated with low mental HRQoL in both parents. In mothers, lower socioeconomic status and foreign nationality were also associated with a higher risk for low mental HRQoL at discharge. CONCLUSIONS: Parents' mental HRQoL is low in the immediate period after their child's open heart surgery but normalizes after 6 months. However, parents in whom the child's disease has a high impact on their family life are at increased risk for persistent low mental HRQoL.

Abstract

OBEJCTIVE: To prospectively assess parental health-related quality of life (HRQoL) and its predictors after child open heart surgery. STUDY DESIGN: Mothers (n = 135) and fathers (n = 97) of 138 children were assessed at discharge from hospital and 6 months after open heart surgery of their child. Parental HRQoL was compared with population norms. Medical, demographic, and psychosocial predictors of HRQoL were examined. RESULTS: In both parents, several domains of HRQoL were decreased at their child's hospital discharge with mothers showing lower HRQoL than fathers. Mental domains were more affected than physical domains. At 6 months, parental HRQoL was within or above population norms. At discharge, symptoms of post-traumatic stress and at 6 months a high impact of the child's disease on family life were associated with low mental HRQoL in both parents. In mothers, lower socioeconomic status and foreign nationality were also associated with a higher risk for low mental HRQoL at discharge. CONCLUSIONS: Parents' mental HRQoL is low in the immediate period after their child's open heart surgery but normalizes after 6 months. However, parents in whom the child's disease has a high impact on their family life are at increased risk for persistent low mental HRQoL.

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11 citations in Web of Science®
15 citations in Scopus®
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Additional indexing

Item Type:Journal Article, refereed, original work
Communities & Collections:04 Faculty of Medicine > University Children's Hospital Zurich > Medical Clinic
Dewey Decimal Classification:610 Medicine & health
Language:English
Date:2011
Deposited On:25 Oct 2011 11:51
Last Modified:05 Apr 2016 15:02
Publisher:Elsevier
ISSN:0022-3476
Funders:Foundation Mercator Switzerland
Publisher DOI:https://doi.org/10.1016/j.jpeds.2010.06.037
PubMed ID:20688338

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