Header

UZH-Logo

Maintenance Infos

Chronisch entzündliche Darmerkrankungen: Erleben von Krankheit, Therapie und Betreuung


Rettke, Horst; Staudacher, Diana; Schmid-Büchi, Silvia; Habermann, Inis; Spirig, Rebecca; Rogler, Gerhard (2013). Chronisch entzündliche Darmerkrankungen: Erleben von Krankheit, Therapie und Betreuung. Pflege, 26(2):109-118.

Abstract

People affected by Crohn's disease or ulcerative colitis experience a high level of suffering. A new generation of anti-tumour necrosis factor-α agents can alleviate the burden of symptoms considerably. In order to develop a need-centred care programme for this patient group, we conducted problem-centred interviews with nine patients about their experience of the disease, the therapy and the quality of nursing care. The evaluation was based on qualitative content analysis. Patients' statements revealed three general categories: (1) "the never ending story" of a life with IBD, (2) "the sudden change" due to successful therapy and (3) "the narrow path" of a new stage of life: the disease no longer dominated daily life. The results emphasise the necessity of specific care for this patient group in order to perceptibly enhance their self-management and quality of life. The study illuminates a developing field of ambulant nursing care, based on the knowledge of patients' needs in the context of a chronic disease characterised by an unpredictable and irregular course.

Abstract

People affected by Crohn's disease or ulcerative colitis experience a high level of suffering. A new generation of anti-tumour necrosis factor-α agents can alleviate the burden of symptoms considerably. In order to develop a need-centred care programme for this patient group, we conducted problem-centred interviews with nine patients about their experience of the disease, the therapy and the quality of nursing care. The evaluation was based on qualitative content analysis. Patients' statements revealed three general categories: (1) "the never ending story" of a life with IBD, (2) "the sudden change" due to successful therapy and (3) "the narrow path" of a new stage of life: the disease no longer dominated daily life. The results emphasise the necessity of specific care for this patient group in order to perceptibly enhance their self-management and quality of life. The study illuminates a developing field of ambulant nursing care, based on the knowledge of patients' needs in the context of a chronic disease characterised by an unpredictable and irregular course.

Statistics

Citations

1 citation in Web of Science®
1 citation in Scopus®
Google Scholar™

Altmetrics

Downloads

228 downloads since deposited on 21 Feb 2014
106 downloads since 12 months
Detailed statistics

Additional indexing

Other titles:Inflammatory bowel diseases: experiencing illness, therapy and care
Item Type:Journal Article, refereed, original work
Communities & Collections:04 Faculty of Medicine > University Hospital Zurich > Clinic for Gastroenterology and Hepatology
Dewey Decimal Classification:610 Medicine & health
Language:English
Date:2013
Deposited On:21 Feb 2014 11:49
Last Modified:08 Dec 2017 04:13
Publisher:Hans Huber
ISSN:1012-5302
Additional Information:Diese Artikelfassung entspricht nicht vollständig dem in der Zeitschrift veröffentlichten Artikel. Dies ist nicht die Originalversion des Artikels und kann daher nicht zur Zitierung herangezogen werden
Publisher DOI:https://doi.org/10.1024/1012-5302/a000275
PubMed ID:23535475

Download

Download PDF  'Chronisch entzündliche Darmerkrankungen: Erleben von Krankheit, Therapie und Betreuung'.
Preview
Filetype: PDF
Size: 125kB
View at publisher