Putting patient participation into practice in pediatrics-results from a qualitative study in pediatric oncology

Ruhe, Katharina Maria; Wangmo, Tenzin; De Clercq, Eva; Badarau, Domnita Oana; Ansari, Marc; Kühne, Thomas; Niggli, Felix; Elger, Bernice Simone; Swiss Pediatric Oncology Group

doi:10.1007/s00431-016-2754-2

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Ruhe, K. M., Wangmo, T., De Clercq, E., Badarau, D. O., Ansari, M., Kühne, T., Niggli, F., Elger, B. S., & Swiss Pediatric Oncology Group. (2016). Putting patient participation into practice in pediatrics-results from a qualitative study in pediatric oncology. European Journal of Pediatrics, 175(9), 1147–1155. https://doi.org/10.1007/s00431-016-2754-2

Abstract

Adequate participation of children and adolescents in their healthcare is a value underlined by several professional associations. However, little guidance exists as to how this principle can be successfully translated into practice. A total of 52 semi-structured interviews were carried out with 19 parents, 17 children, and 16 pediatric oncologists. Questions pertained to participants' experiences with patient participation in communication and decision-making. Applied thematic analysis was used to identify themes with regard to parti