Publication: Intellectual and motor performance, quality of life and psychosocial adjustment in children with cystinosis
Intellectual and motor performance, quality of life and psychosocial adjustment in children with cystinosis
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Ulmer, F. F., Landolt, M. A., Vinh, R. H., Huisman, T. A. G. M., Neuhaus, T. J., Latal Hajnal, B., & Laube, G. F. (2009). Intellectual and motor performance, quality of life and psychosocial adjustment in children with cystinosis. Pediatric Nephrology, 24, 1371–1378. https://doi.org/10.1007/s00467-009-1149-2
Abstract
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Abstract
Cystinosis is a rare multisystemic progressive disorder mandating lifelong medical treatment. Knowledge on the intellectual and motor functioning, health-related quality of life and psychosocial adjustment in children with cystinosis is limited. We have investigated nine patients (four after renal transplantation) at a median age of 9.7 years (range 5.3-19.9 years). Intellectual performance (IP) was analysed with the Wechsler Intelligence Scale for Children-III (seven children) and the Kaufman Assessment Battery for Children (two chil
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- Ulmer, Francis F
- Huisman, Thierry A G M
- Neuhaus, Thomas J
- Laube, Guido F
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Ulmer, F. F., Landolt, M. A., Vinh, R. H., Huisman, T. A. G. M., Neuhaus, T. J., Latal Hajnal, B., & Laube, G. F. (2009). Intellectual and motor performance, quality of life and psychosocial adjustment in children with cystinosis. Pediatric Nephrology, 24, 1371–1378. https://doi.org/10.1007/s00467-009-1149-2
