Publication: Development of a joint set of database parameters for the EU-ROP and Fight Childhood Blindness! ROP Registries
Development of a joint set of database parameters for the EU-ROP and Fight Childhood Blindness! ROP Registries
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Catt, C., Pfeil, J. M., Barthelmes, D., Gole, G. A., Krohne, T. U., Wu, W.-C., Kusaka, S., Zhao, P., Dai, S., Elder, J., Heckmann, M., Stack, J., Khonyongwa-Fernandez, G., & Stahl, A. (2024). Development of a joint set of database parameters for the EU-ROP and Fight Childhood Blindness! ROP Registries. The British Journal of Ophthalmology, 108(7), 1030–1037. https://doi.org/10.1136/bjo-2023-323915
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Background/AimsThe incidence of retinopathy of prematurity (ROP) is increasing and treatment options are expanding, often without accompanying safety data. We aimed to define a minimal, patient-centred data set that is feasible to collect in clinical practice and can be used collaboratively to track and compare outcomes of ROP treatment with a view to improving patient outcomes.MethodsA multinational group of clinicians and a patient representative with expertise in ROP and registry development collaborated to develop a data set that
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- Catt, Caroline
- Pfeil, Johanna M
- Barthelmes, Daniel
- Gole, Glen A
- Krohne, Tim U
- Wu, Wei-Chi
- Kusaka, Shunji
- Zhao, Peiquan
- Dai, Shuan
- Elder, James
- Heckmann, Matthias
- Stack, Jacqueline
- Khonyongwa-Fernandez, Gigi
- Stahl, Andreas
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Catt, C., Pfeil, J. M., Barthelmes, D., Gole, G. A., Krohne, T. U., Wu, W.-C., Kusaka, S., Zhao, P., Dai, S., Elder, J., Heckmann, M., Stack, J., Khonyongwa-Fernandez, G., & Stahl, A. (2024). Development of a joint set of database parameters for the EU-ROP and Fight Childhood Blindness! ROP Registries. The British Journal of Ophthalmology, 108(7), 1030–1037. https://doi.org/10.1136/bjo-2023-323915
