Publication: Ethical sharing of health data in online platforms – which values should be considered?
Ethical sharing of health data in online platforms – which values should be considered?
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Riso, B., Tupasela, A., Vears, D. F., Felzmann, H., Cockbain, J., Loi, M., Kongsholm, N. C. H., Zullo, S., & Rakic, V. (2017). Ethical sharing of health data in online platforms – which values should be considered? Life Sciences, Society and Policy, 13:12. https://doi.org/10.1186/s40504-017-0060-z
Abstract
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Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology (ICT) platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes. With this in mind, the Science and Values Working Group of the COST Action CHIP ME ‘Citizen's
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- Riso, Brígida
- Tupasela, Aaro
- Vears, Danya F
- Felzmann, Heike
- Cockbain, Julian
- Loi, Michele
- Kongsholm, Nana C. H
- Zullo, Silvia
- Rakic, Vojin
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Riso, B., Tupasela, A., Vears, D. F., Felzmann, H., Cockbain, J., Loi, M., Kongsholm, N. C. H., Zullo, S., & Rakic, V. (2017). Ethical sharing of health data in online platforms – which values should be considered? Life Sciences, Society and Policy, 13:12. https://doi.org/10.1186/s40504-017-0060-z
