Publication: Registered access: authorizing data access
Registered access: authorizing data access
Date
Date
Date
Citations
Dyke, S. O. M., Linden, M., Lappalainen, I., De Argila, J. R., et al, & Baudis, M. (2018). Registered access: authorizing data access. European Journal of Human Genetics, 26(12), 1721–1731. https://doi.org/10.1038/s41431-018-0219-y
Abstract
Abstract
Abstract
The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model-"registered access"-to increase and improve access to data requiring an agreement to basic terms and conditions, such as the use of DNA sequence and health data in research. A registered access policy would enable a range of categories of users to gain access, starting with researchers and clinical care professionals. It would also facilitate general use and reuse of data but within the bounds of consent restrictions and other ethical obligations.
Additional indexing
Creators (Authors)
- Dyke, Stephanie O M
- Linden, Mikael
- Lappalainen, Ilkka
- De Argila, Jordi Rambla
Volume
Volume
Volume
Number
Number
Number
Page range/Item number
Page range/Item number
Page range/Item number
Page end
Page end
Page end
Item Type
Item Type
Item Type
In collections
Language
Language
Language
Publication date
Publication date
Publication date
Date available
Date available
Date available
ISSN or e-ISSN
ISSN or e-ISSN
ISSN or e-ISSN
OA Status
OA Status
OA Status
Free Access at
Free Access at
Free Access at
Publisher DOI
Citations
Dyke, S. O. M., Linden, M., Lappalainen, I., De Argila, J. R., et al, & Baudis, M. (2018). Registered access: authorizing data access. European Journal of Human Genetics, 26(12), 1721–1731. https://doi.org/10.1038/s41431-018-0219-y
