Publication: Defining a minimum set of standardized patient-centered outcome measures for macular degeneration
Defining a minimum set of standardized patient-centered outcome measures for macular degeneration
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Rodrigues, I. A., Sprinkhuizen, S. M., Barthelmes, D., Blumenkranz, M., Cheung, G., Haller, J., Johnston, R., Kim, R., Klaver, C., McKibbin, M., Ngah, N. F., Pershing, S., Shankar, D., Tamura, H., Tufail, A., Weng, C. Y., Westborg, I., Yelf, C., Yoshimura, N., & Gillies, M. C. (2016). Defining a minimum set of standardized patient-centered outcome measures for macular degeneration. American Journal of Ophthalmology, 168, 1–12. https://doi.org/10.1016/j.ajo.2016.04.012
Abstract
Abstract
Abstract
PURPOSE: To define a minimum set of outcome measures for tracking, comparing, and improving macular degeneration care. DESIGN: Recommendations from a working group of international experts in macular degeneration outcomes registry development and patient advocates, facilitated by the International Consortium for Health Outcomes Measurement (ICHOM). METHODS: Modified Delphi technique, supported by structured teleconferences, followed by online surveys to drive consensus decisions. Potential outcomes were identified through literature r
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Creators (Authors)
- Rodrigues, Ian A
- Sprinkhuizen, Sara M
- Barthelmes, Daniel
- Blumenkranz, Mark
- Cheung, Gemmy
- Haller, Julia
- Johnston, Robert
- Kim, Ramasamy
- Klaver, Caroline
- McKibbin, Martin
- Ngah, Nor Fariza
- Pershing, Suzann
- Shankar, Dato
- Tamura, Hiroshi
- Tufail, Adnan
- Weng, Christina Y
- Westborg, Inger
- Yelf, Catherine
- Yoshimura, Nagahisa
- Gillies, Mark C
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Citations
Rodrigues, I. A., Sprinkhuizen, S. M., Barthelmes, D., Blumenkranz, M., Cheung, G., Haller, J., Johnston, R., Kim, R., Klaver, C., McKibbin, M., Ngah, N. F., Pershing, S., Shankar, D., Tamura, H., Tufail, A., Weng, C. Y., Westborg, I., Yelf, C., Yoshimura, N., & Gillies, M. C. (2016). Defining a minimum set of standardized patient-centered outcome measures for macular degeneration. American Journal of Ophthalmology, 168, 1–12. https://doi.org/10.1016/j.ajo.2016.04.012
