Header

UZH-Logo

Maintenance Infos

Predictors of quality of life in young adults with congenital heart disease


Rometsch, Sarah; Greutmann, Matthias; Latal, Beatrice; Bernaschina, Ivana; Knirsch, Walter; Schaefer, Christina J; Oxenius, Angela; Landolt, Markus A (2019). Predictors of quality of life in young adults with congenital heart disease. European Heart Journal - Quality of Care and Clinical Outcomes, 5(2):161-168.

Abstract

Aims: The aim of this study was to identify medical and psychosocial risk factors for impaired health-related quality of life (HRQoL) and poor psychological adjustment (PA) in young adults with congenital heart disease (CHD).

Methods and Results: A group of 188 patients (43% females, ages 18-30 years) with various types of CHD and 139 age-matched healthy controls (57% females) completed questionnaires assessing HRQoL, PA, social support, significant life events in the past year, education level, civil status, and employment status. Medical variables were retrieved from the patients' hospital records. Patients reported worse physical HRQoL than controls but similar mental HRQoL and PA. Female CHD patients showed worse physical and mental HRQoL and poorer PA than males. In CHD patients, a lower educational level and lower physical exercise capacity predicted lower physical HRQoL, but complexity of CHD was not related to HRQoL or PA. Less social support was associated with lower mental HRQoL and poorer PA in CHD patients.

Conclusion: Young adults with CHD have impaired physical HRQoL but normal mental HRQoL and PA. Lower physical exercise capacity, female sex, less social support and lower educational level predict an unfavorable quality of life and PA. This subgroup of patients should be monitored more closely and provided with special psychosocial care to improve long-term outcome.

Abstract

Aims: The aim of this study was to identify medical and psychosocial risk factors for impaired health-related quality of life (HRQoL) and poor psychological adjustment (PA) in young adults with congenital heart disease (CHD).

Methods and Results: A group of 188 patients (43% females, ages 18-30 years) with various types of CHD and 139 age-matched healthy controls (57% females) completed questionnaires assessing HRQoL, PA, social support, significant life events in the past year, education level, civil status, and employment status. Medical variables were retrieved from the patients' hospital records. Patients reported worse physical HRQoL than controls but similar mental HRQoL and PA. Female CHD patients showed worse physical and mental HRQoL and poorer PA than males. In CHD patients, a lower educational level and lower physical exercise capacity predicted lower physical HRQoL, but complexity of CHD was not related to HRQoL or PA. Less social support was associated with lower mental HRQoL and poorer PA in CHD patients.

Conclusion: Young adults with CHD have impaired physical HRQoL but normal mental HRQoL and PA. Lower physical exercise capacity, female sex, less social support and lower educational level predict an unfavorable quality of life and PA. This subgroup of patients should be monitored more closely and provided with special psychosocial care to improve long-term outcome.

Statistics

Citations

Altmetrics

Downloads

0 downloads since deposited on 09 Oct 2018
0 downloads since 12 months

Additional indexing

Item Type:Journal Article, refereed, original work
Communities & Collections:04 Faculty of Medicine > University Children's Hospital Zurich > Medical Clinic
06 Faculty of Arts > Institute of Psychology
04 Faculty of Medicine > University Hospital Zurich > Clinic for Cardiology
Dewey Decimal Classification:150 Psychology
Language:English
Date:1 April 2019
Deposited On:09 Oct 2018 10:34
Last Modified:17 Sep 2019 19:39
Publisher:Oxford University Press
ISSN:2058-1742
OA Status:Closed
Publisher DOI:https://doi.org/10.1093/ehjqcco/qcy046
PubMed ID:30239653
Project Information:
  • : FunderSwiss Heart Foundation
  • : Grant ID
  • : Project Title

Download

Content: Accepted Version
Language: English
Filetype: PDF - Registered users only until 1 October 2019
Size: 657kB
View at publisher
Embargo till: 2019-10-01