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The EUROLIGHT cluster headache project: Description of methods and the study population – An Internet-based cross-sectional study of people with cluster headache


Andrée, Colette; Gantenbein, Andreas R; Sandor, Peter S; Schoenen, Jean; Pohl, Heiko (2019). The EUROLIGHT cluster headache project: Description of methods and the study population – An Internet-based cross-sectional study of people with cluster headache. Cephalalgia Reports, 2:1-6.

Abstract

Objective:

To present the methodology and to describe the sample of a large, Internet-based survey on the burden of cluster headache (CH).
Methods:

Participants filled out a questionnaire online. Inclusion criteria were a reported diagnosis of CH and a residency in a European country; exclusion criteria were refusal to give informed consent and to complete the questionnaire.
Results:

A total of 1514 participants completed the questionnaire. Of these, 66.2% were male and 31.2% reported suffering from chronic CH. The diagnosis was validated based upon the responses in 92.9% of the participants. Other diagnoses seemed more likely in 0.8%. Among the participants with self-reported chronic CH, the International Classification of Headache Disorders-3 beta criteria for chronicity were fulfilled by 90.8%.
Conclusions:

In this article, we discuss the applied methodology as well as the properties of the sample. The overall accuracy of the self-reported diagnoses was very good as judged by our questionnaire; women and chronic CH were slightly over-represented. We will present the results of more thorough analyses in future articles and believe that these data will provide deeper insights into the burden of CH and will help to give a voice to those who endure this painful disease.

Abstract

Objective:

To present the methodology and to describe the sample of a large, Internet-based survey on the burden of cluster headache (CH).
Methods:

Participants filled out a questionnaire online. Inclusion criteria were a reported diagnosis of CH and a residency in a European country; exclusion criteria were refusal to give informed consent and to complete the questionnaire.
Results:

A total of 1514 participants completed the questionnaire. Of these, 66.2% were male and 31.2% reported suffering from chronic CH. The diagnosis was validated based upon the responses in 92.9% of the participants. Other diagnoses seemed more likely in 0.8%. Among the participants with self-reported chronic CH, the International Classification of Headache Disorders-3 beta criteria for chronicity were fulfilled by 90.8%.
Conclusions:

In this article, we discuss the applied methodology as well as the properties of the sample. The overall accuracy of the self-reported diagnoses was very good as judged by our questionnaire; women and chronic CH were slightly over-represented. We will present the results of more thorough analyses in future articles and believe that these data will provide deeper insights into the burden of CH and will help to give a voice to those who endure this painful disease.

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Additional indexing

Item Type:Journal Article, refereed, original work
Communities & Collections:04 Faculty of Medicine > University Hospital Zurich > Clinic for Neurology
Dewey Decimal Classification:610 Medicine & health
Language:English
Date:1 January 2019
Deposited On:24 Jan 2020 12:27
Last Modified:29 Jul 2020 12:18
Publisher:Sage Publications
ISSN:2515-8163
OA Status:Gold
Publisher DOI:https://doi.org/10.1177/2515816319863123

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