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Contradictory articulations of citizenship via the (post-)polio body


Rickli, Francesca (2019). Contradictory articulations of citizenship via the (post-)polio body. Citizenship Studies, 23(7):652-668.

Abstract

In Switzerland, polio was eradicated in 1989; however, individuals infected with the virus in the 1940s and 1950s are still alive today. Decades after their infection, many polio survivors were subsequently affected by post-polio syndrome (PPS) – a cluster of long-term consequences from the initial virus leading to further disabling symptoms. During the course of their lives, they had to deal with their changing bodies and, consequently, changing needs in a fluctuating social environment. They have engaged in citizenship projects by having to articulate their bodies in contradictory ways to negotiate the Swiss welfare system and to become rights-bearing citizens. By analysing their different citizenship projects, the article focuses on the multiple roles the body plays in this process. Using ethnographic data, the article analyses how the body is articulated to claim disability-related citizenship rights by looking at issues of work, disability activism and, finally, PPS in old age.

Abstract

In Switzerland, polio was eradicated in 1989; however, individuals infected with the virus in the 1940s and 1950s are still alive today. Decades after their infection, many polio survivors were subsequently affected by post-polio syndrome (PPS) – a cluster of long-term consequences from the initial virus leading to further disabling symptoms. During the course of their lives, they had to deal with their changing bodies and, consequently, changing needs in a fluctuating social environment. They have engaged in citizenship projects by having to articulate their bodies in contradictory ways to negotiate the Swiss welfare system and to become rights-bearing citizens. By analysing their different citizenship projects, the article focuses on the multiple roles the body plays in this process. Using ethnographic data, the article analyses how the body is articulated to claim disability-related citizenship rights by looking at issues of work, disability activism and, finally, PPS in old age.

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Additional indexing

Item Type:Journal Article, refereed, original work
Communities & Collections:06 Faculty of Arts > Department of Social Anthropology and Cultural Studies
Dewey Decimal Classification:300 Social sciences, sociology & anthropology
390 Customs, etiquette & folklore
Scopus Subject Areas:Social Sciences & Humanities > Geography, Planning and Development
Social Sciences & Humanities > Political Science and International Relations
Uncontrolled Keywords:Disability, post-polio, life course, social policy, citizenship rights
Language:English
Date:8 August 2019
Deposited On:13 Feb 2020 12:32
Last Modified:22 Apr 2020 23:07
Publisher:Taylor & Francis
ISSN:1362-1025
OA Status:Closed
Publisher DOI:https://doi.org/10.1080/13621025.2019.1651047
Official URL:https://www.tandfonline.com/loi/ccst20

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