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A standard set of person-centred outcomes for diabetes mellitus: results of an international and unified approach


Nano, J; Carinci, F; Okunade, O; Whittaker, S; Walbaum, M; Barnard-Kelly, K; Barthelmes, D; Benson, T; Calderon-Margalit, R; Dennaoui, J; Fraser, S; Haig, R; Hernández-Jimenéz, S; Levitt, N; Mbanya, J C; Naqvi, S; Peters, A L; Peyrot, M; Prabhaharan, M; Pumerantz, A; Raposo, J; Santana, M; Schmitt, A; Skovlund, S E; Garcia-Ulloa, A C; Wee, H-L; Zaletel, J; Massi-Benedetti, M (2020). A standard set of person-centred outcomes for diabetes mellitus: results of an international and unified approach. Diabetic Medicine, 37(12):2009-2018.

Abstract

AIMS
To select a core list of standard outcomes for diabetes to be routinely applied internationally, including patient-reported outcomes.

METHODS
We conducted a structured systematic review of outcome measures, focusing on adults with either type 1 or type 2 diabetes. This process was followed by a consensus-driven modified Delphi panel, including a multidisciplinary group of academics, health professionals and people with diabetes. External feedback to validate the set of outcome measures was sought from people with diabetes and health professionals.

RESULTS
The panel identified an essential set of clinical outcomes related to diabetes control, acute events, chronic complications, health service utilisation, and survival that can be measured using routine administrative data and/or clinical records. Three instruments were recommended for annual measurement of patient-reported outcome measures: the WHO Well-Being Index for psychological well-being; the depression module of the Patient Health Questionnaire for depression; and the Problem Areas in Diabetes scale for diabetes distress. A range of factors related to demographic, diagnostic profile, lifestyle, social support and treatment of diabetes were also identified for case-mix adjustment.

CONCLUSIONS
We recommend the standard set identified in this study for use in routine practice to monitor, benchmark and improve diabetes care. The inclusion of patient-reported outcomes enables people living with diabetes to report directly on their condition in a structured way.

Abstract

AIMS
To select a core list of standard outcomes for diabetes to be routinely applied internationally, including patient-reported outcomes.

METHODS
We conducted a structured systematic review of outcome measures, focusing on adults with either type 1 or type 2 diabetes. This process was followed by a consensus-driven modified Delphi panel, including a multidisciplinary group of academics, health professionals and people with diabetes. External feedback to validate the set of outcome measures was sought from people with diabetes and health professionals.

RESULTS
The panel identified an essential set of clinical outcomes related to diabetes control, acute events, chronic complications, health service utilisation, and survival that can be measured using routine administrative data and/or clinical records. Three instruments were recommended for annual measurement of patient-reported outcome measures: the WHO Well-Being Index for psychological well-being; the depression module of the Patient Health Questionnaire for depression; and the Problem Areas in Diabetes scale for diabetes distress. A range of factors related to demographic, diagnostic profile, lifestyle, social support and treatment of diabetes were also identified for case-mix adjustment.

CONCLUSIONS
We recommend the standard set identified in this study for use in routine practice to monitor, benchmark and improve diabetes care. The inclusion of patient-reported outcomes enables people living with diabetes to report directly on their condition in a structured way.

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Additional indexing

Contributors:Diabetes Working Group of the International Consortium for Health Outcomes Measurement (ICHOM)
Item Type:Journal Article, refereed, original work
Communities & Collections:04 Faculty of Medicine > University Hospital Zurich > Ophthalmology Clinic
Dewey Decimal Classification:610 Medicine & health
Scopus Subject Areas:Health Sciences > Internal Medicine
Health Sciences > Endocrinology, Diabetes and Metabolism
Life Sciences > Endocrinology
Language:English
Date:1 December 2020
Deposited On:03 Dec 2020 13:41
Last Modified:04 Dec 2020 21:00
Publisher:Wiley-Blackwell Publishing, Inc.
ISSN:0742-3071
OA Status:Hybrid
Free access at:Publisher DOI. An embargo period may apply.
Publisher DOI:https://doi.org/10.1111/dme.14286
PubMed ID:32124488

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