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Online decision aid for patients with prostate cancer evaluated by 11 290 patients and 91 urologists in Germany

Huber, Johannes; Karschuck, Philipp; Valdix, Johanna; Thomas, Christian; Koch, Rainer; Ihrig, Andreas; Hölscher, Tobias; Krones, Tanja; Kessler, Elke; Kliesch, Sabine; Linné, Clemens; Enders, Paul; Michel, Maurice‐Stephan; Wülfing, Christian; Groeben, Christer (2024). Online decision aid for patients with prostate cancer evaluated by 11 290 patients and 91 urologists in Germany. BJU International, 134(2):239-248.

Abstract

Objective
To evaluate the nationwide online decision aid ‘Entscheidungshilfe Prostatakrebs’ (established in 2016, >11.000 users and 60 new users/week) for patients with non‐metastatic prostate cancer (PCa), from the perspective of patients and urologists.

Patients and Methods
To provide personalised information, the tool collects most of the International Consortium for Health Outcomes Measurement standard set, personal preferences, psychological features, and a validated rating of the tool. To evaluate urologists’ opinions, we developed a structured two‐page questionnaire. All data were collected anonymously.

Results
From June 2016 to December 2020, 11 290 patients used the PCa decision aid. Their median (interquartile range [IQR]) age was 67 (61–72) years. The median (IQR) time from initial diagnosis to using the tool was 4 (3–7) weeks. In all, 87.7% of users reported high satisfaction. In a multivariable model, predictors for considering observation were higher knowledge, using the decision aid alone, lower oncological risk, normal erectile function, and respective personal preferences. Of 194 urologists, 91 (47%) had implemented the decision aid in their clinical practice. The urologists’ mean (SD) satisfaction score (1 ‘very good’; 6 ‘unsatisfactory’) with it was 1.45 (0.55), and 92% recommended it. Half of the urologists reported time savings.

Conclusion
Patients and urologists report a very high level of acceptance and satisfaction with this online tool. It offers advantages in shared decision‐making and time efficiency. The usage of the decision aid might improve the adoption of active surveillance and watchful waiting when indicated.

Additional indexing

Item Type:Journal Article, refereed, original work
Communities & Collections:04 Faculty of Medicine > Institute of Biomedical Ethics and History of Medicine
Dewey Decimal Classification:610 Medicine & health
Scopus Subject Areas:Health Sciences > Urology
Language:English
Date:August 2024
Deposited On:22 Jan 2025 07:15
Last Modified:23 Jan 2025 21:00
Publisher:Wiley-Blackwell Publishing, Inc.
ISSN:1464-4096
OA Status:Hybrid
Free access at:Publisher DOI. An embargo period may apply.
Publisher DOI:https://doi.org/10.1111/bju.16329
PubMed ID:38506410
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